Dissemination of results to participants and stakeholders
This section contains
the following:
Introduction
Participants must be given feedback on the results of any
research they have participated in and contributed to. This
can
be done through providing a summary sheet of the findings or letting
participants know where they can access the results.
Initially
information about publication arrangements and how results will be
disseminated to the participants should be provided in the study
information sheet.
Stakeholders are groups or individuals who may have an
investment in the research or may be affected by the research
such
as consumer groups, policy makers. Press releases and presentations
should be considered as well as an executive summary detailing
the
key findings and the potential impact of the research for
these
groups. Conference presentations are an ideal way of
disseminating the results at an international level.
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Things to
consider
- Dissemination of results should be tailored to the target
group.
- The results, if possible, should be shared with
investigators and participants before public release.
- Acknowledge the contribution of participants in any
publication of the research
- Any summary should be
written in clear, concise language
- The culture and diversity of your group may be varied and
you may have to write in different ways for different groups
- Not all participants may want to know the study results.
For those that don't a confidential record will have
to be
kept.
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Additional resources
Involve is a national advisory group, funded through the
National Institute for Health Research (NIHR). Its
role is to support and promote active public involvement in NHS, public
health and social care research.
Canadian
Health Service Research Foundation
A free online database of resources for health services organizations
that wish to use research better
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This page was last updated July 2008.